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Public involvement in the governance of population-level biomedical research : Unresolved questions and future directions

dc.contributor.authorErikainen, Sonja
dc.contributor.authorFriesen, Phoebe
dc.contributor.authorRand, Leah
dc.contributor.authorJongsma, Karin
dc.contributor.authorDunn, Michael
dc.contributor.authorSorbie, Annie
dc.contributor.authorMcCoy, Matthew
dc.contributor.authorBell, Jessica
dc.contributor.authorBurgess, Michael
dc.contributor.authorChen, Haidan
dc.contributor.authorChico, Vicky
dc.contributor.authorCunningham-Burley, Sarah
dc.contributor.authorDarbyshire, Julie
dc.contributor.authorDawson, Rebecca
dc.contributor.authorEvans, Andrew
dc.contributor.authorFahy, Nick
dc.contributor.authorFinlay, Teresa
dc.contributor.authorFrith, Lucy
dc.contributor.authorGoldenberg, Aaron
dc.contributor.authorHinton, Lisa
dc.contributor.authorHoppe, Nils
dc.contributor.authorHughes, Nigel
dc.contributor.authorKoenig, Barbara
dc.contributor.authorLignou, Sapfo
dc.contributor.authorMcGowan, Michelle
dc.contributor.authorParker, Michael
dc.contributor.authorPrainsack, Barbara
dc.contributor.authorShabani, Mahsa
dc.contributor.authorStaunton, Ciara
dc.contributor.authorThompson, Rachel
dc.contributor.authorVarnai, Kinga
dc.contributor.authorVayena, Effy
dc.contributor.authorWilliams, Oli
dc.contributor.authorWilliamson, Max
dc.contributor.authorChan, Sarah
dc.contributor.authorSheehan, Mark
dc.date.accessioned2022-07-29T16:54:01Z
dc.date.available2022-07-29T16:54:01Z
dc.date.issued2020-10-06
dc.identifier215556193
dc.identifier9241786a-adac-4e99-be7e-bcf63a9de164
dc.identifier85092797300
dc.identifier.citationErikainen , S , Friesen , P , Rand , L , Jongsma , K , Dunn , M , Sorbie , A , McCoy , M , Bell , J , Burgess , M , Chen , H , Chico , V , Cunningham-Burley , S , Darbyshire , J , Dawson , R , Evans , A , Fahy , N , Finlay , T , Frith , L , Goldenberg , A , Hinton , L , Hoppe , N , Hughes , N , Koenig , B , Lignou , S , McGowan , M , Parker , M , Prainsack , B , Shabani , M , Staunton , C , Thompson , R , Varnai , K , Vayena , E , Williams , O , Williamson , M , Chan , S & Sheehan , M 2020 , ' Public involvement in the governance of population-level biomedical research : Unresolved questions and future directions ' , Journal of Medical Ethics . https://doi.org/10.1136/medethics-2020-106530en
dc.identifier.issn0306-6800
dc.identifier.otherBibtex: 3d864cd14cf14128b3f5560bd295e19b
dc.identifier.otherORCID: /0000-0002-1442-3050/work/116747783
dc.identifier.urihttps://hdl.handle.net/2164/18966
dc.descriptionFunding This research was principally funded by the Wellcome Trust small grant ‘Public Involvement in the Governance of Population Level Research’ (219383/Z/19/Z). The authors would also like to acknowledge the stimulus of the Wellcome Trust Centre for Biomedicine, Self and Society Award (209519/Z/17/Z), the Wellcome Centre for Ethics and Humanities Award (203132/Z/16/Z), and the Oxford NIHR Biomedical Research Centre, all of which facilitated this work.en
dc.format.extent386075
dc.language.isoeng
dc.relation.ispartofJournal of Medical Ethicsen
dc.subjectR Medicine (General)en
dc.subjectWellcome Trusten
dc.subject209519/Z/17/Zen
dc.subject203132/Z/16/Zen
dc.subject.lccR1en
dc.titlePublic involvement in the governance of population-level biomedical research : Unresolved questions and future directionsen
dc.typeJournal articleen
dc.contributor.institutionUniversity of Aberdeen.Sociologyen
dc.description.statusPeer revieweden
dc.identifier.doi10.1136/medethics-2020-106530


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